Thursday, March 31, 2011

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Irregularity is not my friend

I'm at an eye doctor's appt. and it is one in which both my husband and I are scheduled for the same time. I typically have appointments alone. This wasn't a good plan. Don't like sharing the doctor. At least not in same time frame. Then there was last night. I was awakened at 3am by a family friend who was intoxicated. Terrible start to my day. I went back to sleep around 6 and had to get up at 6:35 to turn my alarm off and snooze for ten more minutes. Although in an average person's mind, this doesn't sound like anything to write home to ma about, it was about enough for me to go crazy!!!! I seldom find a reason to step outside of the box and most days I justcwant to tape the box up!!!
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Wednesday, March 30, 2011

On my way....

Well, finally I know how to blog from my cell phone. Give me a minute and I am going to be blogging all the time.
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Thursday, March 3, 2011

What "A" Time!!!

It has been midterm time for me all this week and a portion of last week. Wow is all a girl can say. If it had not been for the Lord! I think I lost my brain somewhere along the way a couple of weeks ago and it just hasn't found it's way back home yet. I think I will be okay when grades start coming in, but it took everything in me not to withdraw from school this semester. It has been a hard road, but I must keep looking toward the end result, right?  I started telling myself that I was doing this for my dad months ago. He was such a lover of higher education and prided himself in the fact that I had a couple of degrees under my belt. He seemed thrilled when I told him I was back in school. I have mentioned here how on the day that he passed, I told him I had a paper due. He passed right at the moment that I finished my paper. That memory and the memory of how I use to tell him this is for you daddy is what got me through the last exam which was last night.

I don't know what's going on with me still yet and my doctor has said just to give it some time and come back to see him in a month as he said a lot of his patients complain of cognitive issues. That doesn't help when I am the one doing the complaining, but hopefully by the next appointment, all will be well in my head.. I hate when this happens because I am so cognizant of the fact that things aren't right. I play the brain helping games and I read a lot (as much as time allows), but I wait as my doctor tells me to do. I forget a lot and have some of my older coworkers who remind me that forgetfulness is inevitable. For them I am forever thankful as they make me smile. I just wish my forgetfulness would come when I was there age instead of my own:(. I know this sounds like a woe is me post as have my last posts more than likely, but I am okay. I am thankful for the things that have happened in my life and those that still do happen on a daily basis. It is what it is and I have a choice to make lemonade with this bag of lemons!!!

Monday, February 21, 2011

COPAXONE IS NOT AN INTERFERON!!!

It is yet Monday again. I am glad to be here at work a little earlier than I normally would be. It is like spring here. The weather man said it's supposed to reach 80 here today. Wow, I never thought I would think this, but YES! Not only will I be able to get back outside, but the energy bill will go down. I was suprised at high it has been this winter. I am feeling a good bit better and am thankful for that. I took my first Copaxone injection on Friday and I won't be taking another one of those this week while I work, but I may try it again next Saturday. I can only blame my actions on Saturday on the shot. I took it Friday night now that I think about it. I woke up on Saturday morning with big plans to clean, clean and then clean some more. Well, that was short lived. It was like I couldn't get it together. I had the washing machine filling up, wet clothes in the dryer, but had forgotten to turn the dryer on, the floor sprinkled with carpet fresh, the sink filled with hot soapy water, the vacuum cleaner lying on the floor awaiting the entry of a new bag so that I could vacuum(can't get down with the bagless vacuums), bucket filled with water to clean a certain spot in the carpet. I just had tooooo much going on. It's like I started doing everything, but before I could complete one thing, I was on to the next task. I also wasn't thinking straight. I lost my debit card when I went out. I thought I had lost something else and looked for it most of Saturday afternoon, but right now I can't even tell you what that item was....hmmm... Nope! I just don't know what that item was. I guess I will remember when I need it, if I need it. Just thinking to myself, do the interferons not impact others this way? Betaseron was no better. The only other choice that sounds reasonable is Rebif and I don't know anyone who takes that personally, but I guess that is a question to post on the National Multiple Sclerosis Society's Facebook wall. They just seem to dumb me down. I didn't dare to do anything resembling school work. It just wasn't the day for it. I will pay for that come this week, but I just do declare that shot took a day away from me!!! There has to be a better way to stop the lesions that MS causes to appear on my brain. I never considered Tysabri before, but there has gotta be a better way!!! Although, I don't think Tysabri would be that better way. I just have to find out.

Monday, February 7, 2011

Trying to Snap Out of It!!!

It is once again Monday morning. It is unbelievable how fast Mondays come. I was pretty much useless all weekend. I was supposed to work on school work, do some taxes for a couple of customers, catch up on some bookkeeping for my aunt's store,  clean my house and even do my weekly shopping. Well, Saturday morning came and I honestly can't even tell you what I did with it. Before I knew it, it was gone. I remember my husband went to work Saturday afternoon, but he was back home when I woke up to use the bathroom. I didn't even know I had been asleep. Yep, I had fallen asleep around 2:30pm on Saturday and did not wake back up until after 9. Then on Sunday, I stayed in bed until 12:15pm. That means I missed church, missed cooking breakfast, missed putting my dinner on and all of the oh so many other things that I should have done. Ok - Fast foward to Sunday evening and we have another day of which I basically just slept.

My new neurologist ordered a bucket load of tests when I was there and started me on a three day treatment of Solumedrol because I was still enduring the current relapse. He ordered it be given at an infusion treatment center because the meds have caused my sugar level to rise and they are worried about diabetes!!! . My health insurance requires that a physician be present while I get my treatment. The physician that is there at the center is a retired gynecologist. He is there on certain days only. I got treatment on this past Thursday and Friday, but have to wait until Tuesday to get my next and final one as the doctor doesn't work weekends and Mondays. I wasn't able to go home and see my mom because of this and that was a major bummer. Hopefully, I will be all better to drive up there soon and see her. It does me good to spend time with her and I like to think it does the same for her.

Recently has just been a doozie of a time for me. I sometimes wonder about a lot of things, but my faith never waivers and because of that, I press on so to say. I mean there is no need to complain anyway, but it does feel good to get it out of my mind. I am honestly looking forward to a more peaceful, serene time. It has to be near. There is always a quiet after the storm, right?

Wednesday, January 26, 2011

WOW!!!

I do declare that time has just gotten away from me!!! I can not believe that we are almost at the end of January!!! I have been doing school assignments here lately and that has taken away from my blog time. The fact that I am yet another relapse also doesn't help things. I tell you this MS is for the birds. I see a new neurologist soon and I am very happy about that. He is supposedly a very good one and knows his stuff when it comes to MS. I can't wait. I can wait however for the new MRI that he will order I am sure. I am not claustrophobic at all, I just don't like taking time off of work to have it done. I have been going home to see my mom more often and each time it does me so good. It is hard to leave when I do go. I just want to stay there with her. My husband and I are seriously discussing the possibility of moving there so that I can be closer to her and so that we can enjoy the "country." I have always said that I wanted to retire and return to my hometown, but at 33, I am ready for that now, LOL. I just wanted to check in and see what others have been writing and write a little of my own as well. I think this is my therapy so you can imagine how my mind must be overloaded since I haven't been writing as much as I'd like!!! Hopefully, I will be able to get more thoughts out of this scarred brain of mine and here as time permits!!! Hope this is a wonderful week for everyone!!!